Cleft children in developing countries

For many children in developing countries being born with a cleft lip and palate means social exclusion right from the start and life-long suffering on a physical and emotional level.

The survival of a cleft baby can be at risk immediately after birth: a sufficient degree of suction cannot be created during breastfeeding on account of the cleft palate. The infant can only manage to feed successfully if the mother learns a special feeding technique. Food and drink are also considerable problems for older cleft children. As a consequence, the affected children in the developing countries are often malnourished and prone to infections.

The often occurring infections of the middle ear mostly remain untreated in the medically ill-equipped countries. With dire consequences for the little ones, whose speech development is already impaired by the cleft itself: they run the risk of completely losing their hearing and therefore being excluded from any form of communication.

The emotional suffering of these children is almost unimaginable. Due to their appearance they are often separated from society by their family, in the worst cases they are even kept locked away. The birth of a child with a deformity of the face is a cause for despair for many of the parents. They see their cleft child as a “curse” or a stroke of fate. As they often do not know that their child can easily be treated with an operation they try to hide it from friends, relatives and neighbours. Thousands of children in the developing countries thus vegetate for years in dark corners or back rooms. The parents themselves are also victims of the congenital deformation and take their actions out of shame, fear of social isolation and a lack of knowledge of the possibilities of successful treatment. They wish for nothing more than a normal life for their child.