{"id":10026464,"date":"2024-09-02T18:35:59","date_gmt":"2024-09-02T16:35:59","guid":{"rendered":"https:\/\/www.spaltkinder.org\/?p=10026464"},"modified":"2024-09-16T15:23:21","modified_gmt":"2024-09-16T13:23:21","slug":"people-with-cleft-lip-and-palate-in-self-help-and-aid-work","status":"publish","type":"post","link":"https:\/\/www.spaltkinder.org\/en\/category-news\/people-with-cleft-lip-and-palate-in-self-help-and-aid-work\/","title":{"rendered":"People with cleft lip and palate in self-help and aid work"},"content":{"rendered":"\n

Cleft lip and palate (CLP)<\/a> is one of the most common congenital malformations. Around one in 500-600 births is affected. In everyday life, however, this is till rare enough that those affected can feel as if they are alone in their situation. Self-help can play a very important role in countering such feelings. Those born with CLP, or parents of affected babies and children, help each other by passing on tips and information. The emotional value of these efforts can also be huge for people who feel overwhelmed or lonely. Networking with people in the same situation can bring self-confidence and optimism. As members of teams or organizations that deal with “their” issue, those affected contribute valuable knowledge about what is needed.<\/p>\n\n

The Wolfgang Rosenthal Society (https:\/\/www.lkg-selbsthilfe.de\/<\/a>) is a self-help group for people with cleft lip and palate in Germany. It offers those affected and their parents information and opportunities to exchange ideas with people in a similar situation.<\/p>\n\n

People with cleft in DCKH’s cleft aid effort<\/h2>\n\n

A person born with cleft also works on the team of Professor Ganatra, the project director and chief surgeon of our project for cleft lip and palate care in Karachi, Pakistan. She is the telephone contact person for the patients.<\/p>\n\n

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