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Visit to our cleft treatment project in Pakistan

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We have been active in Pakistan since 2013. In 2016, we were able to significantly expand our effort to help children with cleft lip and palate in Pakistan by entering a cooperation with the experienced surgeon Prof. Dr. Muhammad Ashraf Ganatra and the Pakistani charity Al-Mustafa Welfare Society. The cooperation has been highly successful: In 2022, Prof. Ganatra’s team provided nearly 1,400 cleft surgeries.

Under a grant from the German Federal Ministry for Economic Cooperation and Development (BMZ), we additionally established an interdisciplinary cleft center in Karachi starting in late 2020. Enabling all children with cleft malformation treated by us in Pakistan to live the best possible lives is the overarching goal of the three-year BMZ-funded project. To evaluate the project, a delegation from Deutsche Cleft Kinderhilfe recently traveled to Pakistan. Delegation members Dr. Ulrike Lamlé, Sylvia Lüdtke-Haas and Andrea Weiberg were in Pakistan from February 27 to March 5, 2023.

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Pakistan is divided into four provinces: Sindh, K.P.K, Balochistan, and Punjab. With 235 million inhabitants, Pakistan is one of the most populous countries in the world. Currently, Pakistan’s population is growing by about two percent annually, and the average age is 22. Family planning is often a taboo subject and intra-family marriage is widespread. Nowhere in the world is marriage among relatives as firmly rooted as in Pakistan: 56 percent of marriages take place within the family. In rural areas, four out of five marriages are between cousins (source: Martina Merten, Global Health Specialist). The consequences are fatal: the percentage of children who are born with genetic defects, such as cleft lip and palate, is significantly increased. Educating people about this is part of our work. But breaking with such long-established traditions is a long journey. And broaching the subject is a tightrope walk if you don’t want to lose people’s trust.

Pakistan also holds a leading position in another statistic: Pakistan has the second-highest out-of-school rate in the world. Many children still drop out of school prematurely or receive no education at all. The illiteracy rate is 42 percent, and as high as 53.5 percent for women (sources: BMZ, unicef).

The current living situation in Pakistan is difficult due to high inflation (as of February 2023: almost 40 percent). Many of our patients’ families are moving to the countryside because they can no longer afford to live in Karachi. But due to the high cost of gasoline, even transportation to the city is almost impossible to afford. This is a far-reaching problem, whose impact we feel in our work as well: It is becoming increasingly difficult to motivate parents to take their children to the follow-up appointments after the operation. Or an operation cannot be performed as planned because it is discovered during the preparation for the surgery that the child is ill, and the parents cannot afford the cost of a second trip.

Some glimpses of this year’s work visit to Pakistan by a delegation from DCKH.
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Arrival in Karachi

Karachi is the capital of Sindh province and, with a population of some 17 million, the largest city in Pakistan. Since 2013, we have had our permanent project location here at the Al Mustafa Medical Centre. With the launch of the BMZ project, we were able to massively expand our help for children with cleft malformation here. Under the umbrella of “Cleft Pakistan“, Prof. Ganatra and his team can now offer all the specialist disciplines relevant to the treatment of cleft lip and palate: Surgery, Pediatrics, Speech Therapy, Psychosocial Care, ENT, Dentistry and Orthodontics. During a tour of the hospital, we visit each department, talk to the therapists and doctors. A social worker and two other employees are also part of the team, maintaining contact with the patient families.

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Opening of our cleft center

In the presence of the German Consul General Rüdiger Lotz, our new cleft center is ceremoniously inaugurated on day 2 of our trip. In a presentation, Prof. Ganatra introduces our project and its successful development over the last five years. During the subsequent tour of the hospital, the various specialist departments provide exciting insights into their work – a valuable exchange for all participants. Prof. Ganatra and his team are pleased with the interest shown by the Consul General, who is impressed by what has been achieved.

From the very beginning, Prof. Ganatra’s vision was to offer his patients comprehensive care beyond the surgery. Thanks to his efforts, the funding from the BMZ, and the support of the Al-Mustafa Welfare Society, this has now become a reality. We are proud of this exemplary project and will do everything in our power to ensure that the affected children and their families continue to receive this vitally important care in the future.

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Andrea Weiberg, Ahmed Raza Tayyab (General Secretary, Al-Mustafa Welfare Society), Dr. Ulrike Lamlé, Prof. Ashraf Ganatra, Sylvia Lüdtke-Haas.
One common mission: Prof. Ganatra and his team, Al-Mustafa Welfare Society, Deutsche Cleft Kinderhilfe.
Abdul received surgery from Prof. Ganatra on the first day of our visit to Karachi.
Touching encounters.
Official inauguration of our cleft center by Consul General Rüdiger Lotz.
Successful partners: Ahmed Raza Tayyab and Prof. Ganatra.
Psychologist Suha Tariq tells us about her work with the children.
Meeting the speech therapists. The department is headed by Sobia Ashfaq (pictured right).
Umalaila is responsible for maintaining contact with the patients. She is a former patient of Prof. Ganatra.
A group picture at the end of the ceremony.
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Surgical mission to Umarkot

From the mega-city of Karachi, we set off on a journey to Umarkot – quite the change of surroundings: Umarkot is a small town in eastern Pakistan, near the Indian border. Prof. Ganatra regularly carries out surgical missions to treat cleft patients here, accompanied by a large team. Everything is perfectly organized. Everyone has a job to do: from patient communication and photo documentation to comprehensive medical care of the patients – the team is well-coordinated and the procedures are tried and tested. This is important, because surgeries outside a fixed project location require particularly careful organization.

Our operation site is the Late Syed Ali Mardan Shah Hospital. The hospital was completely destroyed in the catastrophic flood in the summer of 2022 and is currently being rebuilt. We are allowed to use the operating room, but have to bring the necessary equipment ourselves. We are supported by the local aid organization OBA (Old Boys Welfare Association) from Dhoronaro and experience an incredible motivation to help, as well as an incredible hospitality.

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Prof. Ganatra at work. Andrea Weiberg and Sylvia Lüdtke-Haas (pictured left) watch the proceedings.
The patients and their families wait in the hospital ward.
Dr. Ulrike during the post-surgery examination of a patient.
In the OT, the entire team works hand in hand to guarantee the best results.
Group picture with our hosts, the team of the OBA
Honors from Dr. Mir of the OBA for our successful mission.
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A great need for help

Many families have traveled long distances to have their children receive treatment from our team. There are no drop-in centers in the region for patients with cleft malformation. The children are accompanied by their parents, grandparents or other family members. The women are shy, hiding behind their scarves. The poverty is obvious. A striking number of babies are malnourished. The desperation and worry of the mothers are palpable. Here, surgery means saving lives. After the surgery, the entire family watches at the child’s bedside, caring touchingly for the little patient, following the nurses’ instructions. The relief is palpable.

A total of 40 children received surgery during the two days in Umarkot. The next mission is already being planned.

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Neyal is one of 40 children who received surgery during our mission to Umarkot.
Neyals cleft lip is already fading into the past on the day after the surgery.
“We are so poor, we only have Allah”: Maria with her grandmother.
Mohsin with his mother and his uncle.
Meena weighs less than 3kgs. She too is doing well after her surgery.
Raada with her mother before the surgery.
Baby Mehtab recovering from the surgery.
The whole family cares for this child after the surgery.
Gulshans mother gives us a smile.
From our projects
Visit to our cleft treatment project in Pakistan
Helping the children with cleft malformation treated in our cleft treatment project in Karachi live their best lives is the overarching goal of our three-year BMZ funding project. To evaluate the project, a team from Deutsche Cleft Kinderhilfe traveled to Pakistan in early 2023. An exciting trip with intense, touching impressions of the successful work done by our Pakistani partners.
Project visit Sierra Leone
Many people in Sierra Leone are affected by extreme poverty. This also means very poor conditions and little hope for treatment for those who give birth to a child with cleft lip here. Now our long-time volunteer supporters and Africa project leaders, the highly qualified surgeons Dr. Dr. Oliver Blume and Gunther Au-Balbach, visited the country to establish contacts for a new cleft project and to provide care to the first patients.
December 2022: Project visit in Vietnam
Our help for children with cleft lip and palate would be impossible without our network of helpers. In addition to many local surgeons and other medical professionals in the partner countries, this network also includes volunteers who support our local teams with passion and skill. An intercultural exchange that is enriching for both sides. The work in our project country Vietnam has been accompanied since 2016 by the Munich doctors Dr. Denys J Loeffelbein and Dr. Daniel Lonic. In December 2022, the two visited their colleagues and friends in Vietnam again for the first time since the pandemic.
The story of Maui, cleft child from Colombia
Our new project to help children with cleft lip and palate in Colombia begins with a very unusual case. Maui was born with a cleft lip and palate. His parents belong to an indigenous people and do not know how to get him the help he needs. By a happy coincidence, Julia, a Swiss woman living in Colombia, is a neighbor of the family and offers to help. In search of treatment options, she comes across Deutsche Cleft Kinderhilfe.
Video: Impressions from Bolivia
The parents of our cleft children are always full of gratitude. When their child is born with cleft, they often do not know what to make of the malformation, much less that it can be treated. And even if they do - most of our little patients come from the poorest of backgrounds. Their parents could never afford the operation. It is an unimaginable happiness for them to learn that their children can receive qualified treatment, and free of charge even. This wonderful, touching film from our Bolivian aid project captures these special moments of happiness.
Video: Impressions from Pakistan
This film, made for our Pakistani partner organization, the Al-Mustafa Welfare Societey, by the father of one of our patients, shows scenes from our work in Karachi. From here, our senior surgeon Prof. Ashraf Ganatra treats cleft children from poorest families. He operates the children from Karachi at the Al Mustafa Medical Center. In order to reach the many needy families living outside the city, he also regularly heads out to local provincial hospitals to treat cleft patients there.